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Fighting Rare Diseases to Make a Difference While Being Different
PLEASE DONATE TO HELP OUR RARE DISEASE CHILDREN
Please take a few minutes to consider how you might make a difference in the quality of life for those Affected by rare diseases. We believe everyone has something of value to offer his or her community. From volunteering your time to sharing your resources to networking your connections, there’s an outlet for you to make a difference in our community, and in turn, make a difference in you.
Guardian Hands Foundation is designed to raise funds and awareness in an effort to fight rare diseases. As the State of Florida continues to cut funding, health care services for the children in our communities continues to be cut. Donations like yours are more important than ever.
Thank you for your commitment and pledge to help people affected by rare and genetic diseases.
Every dollar donated goes directly to the Guardian Hands Foundation, to help fund education and awareness programs, community building and outreach. Donation are tax deductible to the extent of the law. Get involved! Become a Guardian today.
JOIN OUR TEAM (C.U.R.E) CREATE - UNDERSTAND - RESEARCH - EDUCATE.
As you may already know, we are working to pass legislation called the OPEN ACT (Orphan Product Extensions Now, Accelerating Cures & Treatments) that could double the number of treatments available to rare disease patients.
The OPEN ACT was passed in the House of Representatives last July as part of the 21st Century Cures Act (HR 6). However, the companion legislation in the Senate has stalled, and we are running out of time to get it enacted into law in an election year.
This bipartisan bill could bring hundreds of safe, effective, and affordable medicines to rare disease patients within the next several years by incentivizing drug makers to repurpose therapies for the treatment of life-threatening rare diseases. We need your help to make this bill a law.
Thanks again for your support.